Plan B

After Hunter's initial first quick response to the steroids, we were hopeful that his antibodies could be controlled with high dose steroids and the IVIG. Today's bloodwork shows that this is not the case. Hunter will get 3 more units of blood today to replace what his body is destroying. His white count and platelets look great, and he is producing red blood cells, he's just got some confused antibodies in there.
Hunter's team will meet tomorrow and most likely start him on a new drug. It is a once a week infusion that targets his B cells, which are apparently the issue. It could take one week, could take five, could take longer to fix his issue. We pray and believe it could happen tomorrow before they even start the new drug. Hunter is gearing up for battle, and ready to have this in our rear view mirror soon. His homework is to eat, sleep, and walk. You better believe he's been doing his part. He is learning how to manage the symptoms (nausea, cramps, jitters, and heartburn) of his new steroid regimen. He hasn't lost his fighting spirit, let me assure you. He wanted to watch something to make him laugh yesterday, so he turned to old faithful, Dumb and Dumber.

He's also not allowed to clip his nails for bacteria reasons, so his mom fixed him up. He said no to polish though;)








Today's gift. He loves those things!




It's been a huge blessing to have all of us with him again. Hunter loves the peace and assurance that his dad brings, and says it just feels good to have his dad's big hands rub and pray over him. Jana has always been his a source of comfort and helps to encourage him. Sometime a long talk with your mom just makes everything feel better.







Our kids, as well as us, have struggled with Hunter being back in the hospital. Even though they are young, they know enough to be upset. It became apparent last night on the phone that Benton needed to see me. He broke down and it nearly tore my heart in two. It's been 8 weeks since we've seen our kids. Hunter immediately told me to go home. Erin and Michael comforted him in my place. It's one thing to watch Hunter suffer, but complete agony to see your kids hurt. It is with a heavy heart that i gave Hunter a hug and got ready to tend to my boys. Mark is driving me halfway where there's a car waiting. I'm not sure how long I'll be home, but I have full confidence that Mark and Jana will take care of Hunter. While I will be thinking an praying for Hunter constantly until we are back together, time with our little boys is going to be precious.












We knew this would be hard. And it is. But hard just really scratches the surface. A week ago, we were thinking we might be one of the lucky ones that gets to leave even earlier than the 100 days. We are working on focusing on all the good that is going on. We know that God goes with us on our journey and picks us up when we no longer can take another step. We believe in the power of prayer, and ask that you pray for our entire family, wisdom for the doctors making decisions, and for Hunter's body to stop destroying red cells.
A friend put this on my Facebook wall, and I think it's just perfect:




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